Friday, December 5, 2008

Where's the beef?

They stopped Ella's feeds today...again. :( She is still a little girl and we have found that her stomach can only handle certain things before it becomes bloated and tight and they stop the feeds. This time, it was the cornstarch which was being used to level out her sugar levels but also made her bloated. Our fiesty girl was not quite her normal self today and when her nurse took her blood sugar she didn't complain which is not like her at all. However, by the end of the day she was cranky (which is actually a good sign) and fussy whenever I changed her diaper and took her temperature. Hopefully, they will start the feeds in the morning and our doctor is going to continue the IV nutrition even after the feeds are started because she needs to gain weight desperatly. Also, the glucose in the IV will regulate her sugar levels until she gains weight and her body is able to produce it on her own. Unfortunatly this is a double edged sword, because the IV nutrition (TPN) causes problems with her liver but without the extra nutrition she is not gaining weight like we want her too. (also, the extra calories in the TPN shouldn't cause her to bloat like calories added to her milk)

Pray for her liver that it will bounce back after the TPN and that her belly and bowels go back to normal. Also, pray for her to gain weight and grow...grow...grow

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